Tag Archives: chronicillness

Emilia Clarke Loves Beyonce…But Can We Talk a Moment about The Mother of Dragons Surviving Two Brain Anyerisms?

Emilia Clarke loves Beyonce (I don’t get it but hey, I am still bitter about Destiny’s Child so to each their own). But instead of everyone freaking out how Clarke was star struck herself about Bey, let’s talk about how this hard-working star suffered two brain aneurysms and underwent surgery while filming and was able to complete a 10-year series.

Yet again, a hard-working female is ignored because a couple of people don’t agree with her adoration of another hard working woman. No matter who you agree with the ending * no end spoilers here*

you cannot disagree with the power and affection her character Daenerys Targaryen held for so many. The surviving member of two… ERM, three Targaryens, had a horrific first wedding night. She was repeatedly raped by a man whom she would eventually grow to love dearly. Her dick brother sold her off for his own gain without a care of what it would take to get his silver haired ass to the Iron Throne and that he threw his little sister to known savages. And while her brother got his just desserts thanks to Khal Drogo (yay Aquaman!) Dany will still always hold dear in my heart as a strong, powerful, and very willful role model.

The Stark Phoenix Rises From the Ashes

I began sneering every time Sansa Stark (Sophia Turner, Xmen’s new Jean Grey/Dark Phoenix) came into view until her horrific story unfolded. We watched a spoiled little girl who witnesses her father’s death evolve into another strong character ( thanks to MORE rape and an abusive relationship with Joffrey and asshat Ramsey. You are killing me, George [Martin]). She now tops my personal list of beloved female characters on a show that, against all odds, took an awful situation and transformed it into a BIG personal plus for Sansa. Although as a woman I do love a good strong female lead, we should not forget the story arcs of are tortured men such as Jon Snow and one of my favorites Theon Greyjoy. Our triumphs, tribulations and our failures all create who we are as people and although these are fictional characters, we can see ourselves within them which is why we relate to them so much.

Between Arya aka Maisie Williams (GoT, Doctor Who) suffering from depression and Dany aka Queen T Emilia Clarke almost dying from blood vessels EXPLODING IN HER HEAD, my Fire and Ice ladies still fight their own demons in real life. This is what we should be discussing; how these women are working tirelessly for our benefit and coming out victorious in the end career-wise and battling very real health issues. We “normal” women struggle with baby dragons of our own (PPD) plus health issues and full time work. While I have never suffered from brain anyerisms, I have been down for the count with major and severe migraines. I can’t even fathom the pain she (Clarke) went through all for the sake of a television show. As someone who understands a deep personal journey which has many twists and turns with great psychological and physical obstacles, let us leave this show knowing that our favorite heroines live on in our hearts even after the end credits role.

So hate on Ms. Clarke if you will because she had stars in her eyes. She will always be the Mother of Dragons and Breaker of Chains in this home.

#SuicideDue2Pain is a Legitimate Hashtag and That Should Be A HUGE Concern

Yes, we all know that drugs is a huge problem in this country. Millions of people die from overdoses because of drug abuse and that is a major concern. I have lost many people in my life because drug related overdoses and someone I love dearly was brought back by ER doctors twice, so I understand how horrible drugs can be. But for those of us who deal with chronic pain everyday we are the ones who are suffering. I don’t agree with doctors just handing out prescription after prescription. But that is one of just many problems. Those who need narcotics and other opioids are being denied because of other people’s mistakes. I tremble and shake with pain every single day because I am no longer allowed to be given pain medication that can help my chronic pain.

People are killing themselves from pain. If you have chronic pain or a chronic illness you may have, at least once, had that thought flash into your mind.

This is an absolute disgrace. There are pain sufferers who are willing to take drug tests, they are willing to go to pain management doctors, we are willing to do anything it takes so that we can get proper care to appease everyone else. But who is helping us? The doctor who outright said NO I can’t help you so he sends you to a pain management dr who also says NO. By the way that is their job…to help manage pain in a safe way. So instead people are killing themselves because they can’t function. Or maybe they themselves are now getting drugs illegally because that’s the option now.

Politicans are taking OUR choices away because of of something they don’t understand.

Someone needs to figure it out before the NEXT EPIDEMIC is suicide from lack of medical care.

#ButYouDontLookSick…But You May Look Like Shit

Revised

On the online mag all about endo I write for, Do You Endo published a piece I wrote discussing the makeup I like to use. It also explained how people have treated me during my 26 years of dealing with this disease. Rereading has made me realize that there are so many people out there who cover their faces with layers of concealer just to please others. I am one of them. I do it because I really love makeup. Yet I also do it because people can’t keep their pieholes shut about thibgs that don’t concern them. Trying to explain to co workers I was home sick but not contagious was exhausting in itself. I have had people leap away from me when I arrived at work looking green faced from not just endo but actually being sick. No one believed I couldn’t spread it. And none of them believed I was sick at all.

I began to tell them I had an actual sickness that was contagious like the flu.

Endo affects your immune system. I can get fevers when I get a flare. And during my period I can get one of my famous three day long migraines. I am bleeding, puking, and shivering from fever and I definitly look the part of sick girl a lot. So I bought a bunch of makeup. All because people had opinions about my sickish glow (and I was tired of their shitty comments) I put makeup on for them, not me. But the unwanted comments continued anyway. I spent my mornings applying my lipstick, I winged my eyeliner, and highlighted my cheekbones. However instead of being told I look “like shit” I got the “but you don’t look sick” comments. So when I told people I was sick they didnt believe me at all.

So I don’t wear it…I look ill. But I do wear it…I dont look ill enough to take seriously. And that is really the point I was making. Sure makeup to me is fun and I like wearing it. But I stopped wearing it for them and wear it for me. I mean no one at work cares as long as I get the job done. The kid at the supermarket doesn’t care as long as I pay for the food. So I wear it for me and me alone. People get offended when others don’t look presentable enough for their standards. We used to get dressed up to go to a Broadway show or if we went out to dinner. Now people don’t get dressed at all, or to judgemental people they don’t make an effort. We were really dressing up nicely for ourselves because when you’re in a dark theater who the hell can see you anyway?

The point is do it for you. Or don’t. It is YOUR choice. Someone is going to have an issue with you reguardless. Might as well be happy with your own choice.

Frustrated Incorporated

There is nothing worse than feeling frustrated with situations that fall completely out of your grasp. Recently I found out my baby boy is autistic. We had to meet a bunch of specialists and fill out these questions about him. I’ve been in the preschool teaching game for over a decade and seven of those years with kids three and under. I know the signs as a teacher. You notice things a child does differently than the others. And I did notice with him. But boys do things at a different speed then girls. So I wasn’t worried. Not really. Well, maybe a little. A lot of the signs of children on the spectrum can also be seen as typical behaviors. Like categorizing toys by size and color. Repeating certain words and not being clear with them. I knew what bothered my son and what didn’t. It would be fine going forward right? Then I started reading pamphlets and websites and began to worry more. It’s like when you have a small ache that hasn’t gone away for a while and you go on Dr. Google and see what it could be. Suddenly after ten minutes of research, you find out you’re dying of some rare disease that only .5% of people ever got in the history of Earth. These sites began talking about the signs and then I am reading about if he needs adult care and how to live with your autistic child forever. I imagined him at fifty and us barely moving thanks to our barely functioning bodies. How could I care for my grown son when my own shit was a struggle to live with? What happens when I’m sick and he needs me? I am already crawling half the day from my endo.

I am in full panic mode after reading this stuff. We don’t know yet what level (if that’s how they measure) he is. I don’t know if he will do well in school all day. I sit with him now, his pale cheeks spotted with bits of dried muffin and he is happy. He is watching videos about dinosaurs and he is naming them all along with colors and shapes, numbers and animals. He loves other kids and he hugs us and yells out “family hugs!” He jumps with excitement when he sees his older sister and they play legos together. I see him as just GG, my middle baby and happy boy. What if some asshole kid with his yellow-toothed punk friends picks on him? What if he hates himself because he is “different”? What if some shitty teacher targets him and flunks him all the time because he learns differently than other kids? My husband and I sometimes dread these scenarios that, of course, have never happened yet. But my mind is on its own, creating this world that may never occur. And I’ve been a parent for a while now and a teacher for a long time. I know this is just how our minds work. All I want to do is protect my kids from anyone who will ever do them harm. I can only wait which sucks 100%. Until then I can watch him enjoy his little life, his love of snuggles and dinosaurs and hope everything will work out.

#TeamGrayson

When Science Fails Us: Funding says Endo Sufferers are Hot AF but Zero Help Looking for Cure

Fifty or so years ago women (more so than today at times) were treated as housewife and baby maker. We weren’t taken seriously. We were heart shaped -asses and, loin of pork making domestics whose opinion was worthless. Working women with families…well forget you. You were awful for choosing work over the family over your HUSBAND. Who would make his ham? Who would fetch his Sunday paper? Your looks needed to be up standards because seriously…who wanted a homely wife? The little woman needed to be feminine but not slutty. Sexy but not whorish. Getting birth control as a single woman caused great concern. Beauty and a thin waist was life.  At this time science was coming to the forefront too, concerns about the effects of smoking and heavy drinking did to you. Everyone smoked. Pregnant women, people in the office, and people on the train lit up.  Life was for the living. Sure we can take a page from Mad Men’s Mr. Draper’s book and live like life was going to end tomorrow. But we grew wiser and more conscientious about certain important issues such as women’s health.

As someone who has endometriosis, I’d much rather my health reflect 2019 and not 1959. I do have a love of red lipstick, sweater that hug all the right places and my great grandma’s cat eye glasses. But fighting for a cure so me and my fellow #endobabes and #endowarriors don’t have to suffer any longer is vital to me. Which is why THIS atrocity of a study makes my blood seethe. Someone thought it was important to fund…yes put money into a study about how women who have endo are more attractive than other women. As if this information means anything. As if it helps anyone. It is demeaning. It is isolating for us who have it. So who gives a fuck if Sarah is pretty but hospitalized because her ovary was twisted and exploded beyond repair. And who cares of Melody can’t ever have kids because a doctor had to scoop out all her reproductive organs. They are pretty. They look good in jeggings.

Are you FUCKING kidding me?

Our disease can hold us back in so many ways. We have lost jobs, babies, relationships, our self-esteem and you Mr. and or Ms. Scientist have wasted time, energy, and funds to say “but hey at least you’re cute”?

I call BULLSHIT. Hell, I scream it. Does anyone care if your brother with cancer is hot? NO. The man has CANCER. He is SICK. He wants to live a normal and healthy life. So get your ass in gear and your fucking head out of the sand and use your resources for something WE CAN FUCKING USE.

I can wear my poodle skirt with pearls and stick my combat boots up your ass. I am a woman who is saying loud and clear this study is shit. My fellow endo warriors are more than that. And shame on you for thinking otherwise.

Let Women Be Women

When I was told I had endometriosis the word that was bounced around was infertility. Thirty to fifty percent of us who suffer from #endo will have trouble conceiving or not be able to. I was one of the women who could get pregnant without any fertility help. I have talked to many girls in their 20’s who are getting hysterectomies because their pain is so unbearable. Their doctors recommend to take everything out. Then there are those women who are in so much pain that even if there is a small chance of having a child, their suffering takes precedence over anything BUT are denied because they are told they are still within childbearing years. We also know that just because you do take your organs out, doesn’t mean endo isn’t hiding somewhere else. That does not include those women whose organs have been fused together by endometriosis which render them infertile (if found to have affected reproductive organs). In our society, a woman’s identity is almost always tied to having children. We get asked when we are getting married, then when are we having children. Then once we have a child, when are we having another one. We can’t even give birth yet without people asking when is the next one coming. The next one? Can we get the current one out first? After my third child, I got a tubal ligation and my husband got a vasectomy months prior to me giving birth. I had one nurse after my c section asks this famous question of when I’m having the next one. I told her I was done and she said to me that I say that now but I will surely change my mind. To which I replied back I was cut and burned and my husband had a vasectomy. Therefore no, we would not be having a fourth child. This woman kept telling me I would change my mind. And while I know there is a small percentage of women who can still get pregnant after both were surgically sterilized, my insistence of not having another one kept flying past her. Was she seriously getting into an argument with me about having another child? The one I was holding was barely 12 hours old and already I was being told my mind would be changed by somebody else.

Women are also construed as selfish if we chose not to have kids. What about the women who can’t? I have been made to feel guilty for having kids by a few people. How about women who have no desire to become mothers? They are told they are selfish. Do people say what is wrong with a woman who doesn’t want to have a child? We are made to feel guilty no matter what our choices. We already have the world on our shoulders without having to have extra stress about our bodies which is nobody’s business but our own. Financially it is a nightmare for many of us. We make too little to support a family even when are working. The government says we make plenty. We go and get assistance and we are deemed as lazy or unfit because we need help. So many of us wait until we are older which causes complications for our own bodies and the children we carry. Why are we made to look terrible if we ask for help? If there is an income flowing in and out of my house I should not have to be questioned if there is anything I need assistance with like rent or health insurance.
I do not like when people make assumptions about me or my situations. In fact, you don’t even have to make assumptions you can ask me. If there something I choose not to share it’s quite simple I just won’t. But myself, like many of you, do not like it when people just assume about my situation without knowing all the facts. You need to do what is good for you, not listen to your mother law beg for a grandkid or people who are convinced to pray for a miracle. Your suffering means something. You shouldn’t feel guilty for being confused or angry about all this. You have the right to sob endlessly about the choices you face. The point is not to let anyone convince you they know better. Be strong warrior. You got this.

#Shame

So recently I’ve noticed a trend which I know has been around for a long time but in recent days and weeks, I’ve seen it more. Shaming people for being themselves. Most recently I have witnessed woman shaming among other types but this was super recent.

So the story: A picture or status would pop up on a mutual friends social media and some of us comment on it and we will be banter and argue and sometimes it does get heated. But in the past we have all said our opposite opinions made for good discussions and we respected each other. We all need a good discussion based on our views. And it’s great to share our differences and a little heat in the conversation is always welcome but when it starts to catch on fire it’s time to put it away . Anyway, I’ve noticed not just with me but other women are being called “sluts” or even “cunts” and more recently “liberal/feminist cunt or slut”. We are told to be quiet because we are women. And the worst part is not just being called such names but after the conversation has ended a day or two later this person will come back and keep name-calling. And if we continue spouting our opinions we are then called a “feminist ____” immediately followed with some more derogatory words. Why should I have slanderous words flown at me because I have an opinion just like somebody else does?

Slut. Bitch. Whore. These are the words that stick to us and stick inside us, in our guts and dig at our confidence. My opinion is worth just as much as yours and vice versa. When people say horrendous things and spout them as facts you then know there is nothing you can say that will get through to them even just being pleasant to each other. Even showing statistical data suddenly “the government is going into the internet and changing all the information to suit their needs”. I was shamed a few weeks ago when some women came to our house to discuss their views on their religion. When told we do not practice that religion they then said everyone makes mistakes. You can share your views and we can discuss the differences and what we believe in, but don’t tell me I made a “mistake” because I believe or don’t in something. Women vs women in the name calling department is awful. We should be able to have our own differences but unite based on the fact that we share many things together and embrace our differences. But when you hear such disrespectful talk coming out of a man’s mouth, that goes even beyond machismo and mansplaning…it is frightening. Sure they are only words and that is true, but our history shows that entire nations can be moved by what comes out of even one person’s mouth. Verbal threats can drive-through a woman just as badly as a fist through a wall. It’s more than just feminism or a so-called liberal point of view, it’s speaking with such disgust and hatred that it just drips out of your mouth with toxic distain. Of course you have freedom of speech to back you up and if that’s how you really feel about the people around you whether women, men, or whomever you speak of then it is of course your right. But then don’t become aghast when people fight against it or have equally strong opinions that you say “do not count”. If you choose to accost people with your words then be ready to have those same people defend themselves.

I am OVER the slut shaming. The woman shaming. The “I have a vagina” shaming. Religion shaming. In a recent social media conversation displayed, someone said that women invite rape if you drink too much or dress a certain way and it is your fault if you are a victim. Now we are victim shaming women because let’s see… my dress hem might be a little too high?? My lipstick is too red? If you decided to go to a party and drank a little too much and you are assaulted then well…it is your fault because how dare you try to have fun at a party and trust that your life isn’t torn apart by someone who wants to hurt you! I get stay at home mom shaming and when I worked I got shamed into that too. I am told I am lazy for having a chronic disease I can’t help because there are days I can’t do anything more than get up and get dressed. I have witnessed awful comments about people’s sexuality in a negative way if they support someone or something another person does not approve of. There is too much SHAMING and it is EVERYWHERE.

If you must call me a liberal snowflake feminist whore, then go right ahead. I will not let your words show me who I am Or my tribe of women, men, LGTBQ, or ANYONE who is shamed for being who they are. You can have your opinion of me. But you can’t DEFINE me.