Tag Archives: chronicpain

Emilia Clarke Loves Beyonce…But Can We Talk a Moment about The Mother of Dragons Surviving Two Brain Anyerisms?

Emilia Clarke loves Beyonce (I don’t get it but hey, I am still bitter about Destiny’s Child so to each their own). But instead of everyone freaking out how Clarke was star struck herself about Bey, let’s talk about how this hard-working star suffered two brain aneurysms and underwent surgery while filming and was able to complete a 10-year series.

Yet again, a hard-working female is ignored because a couple of people don’t agree with her adoration of another hard working woman. No matter who you agree with the ending * no end spoilers here*

you cannot disagree with the power and affection her character Daenerys Targaryen held for so many. The surviving member of two… ERM, three Targaryens, had a horrific first wedding night. She was repeatedly raped by a man whom she would eventually grow to love dearly. Her dick brother sold her off for his own gain without a care of what it would take to get his silver haired ass to the Iron Throne and that he threw his little sister to known savages. And while her brother got his just desserts thanks to Khal Drogo (yay Aquaman!) Dany will still always hold dear in my heart as a strong, powerful, and very willful role model.

The Stark Phoenix Rises From the Ashes

I began sneering every time Sansa Stark (Sophia Turner, Xmen’s new Jean Grey/Dark Phoenix) came into view until her horrific story unfolded. We watched a spoiled little girl who witnesses her father’s death evolve into another strong character ( thanks to MORE rape and an abusive relationship with Joffrey and asshat Ramsey. You are killing me, George [Martin]). She now tops my personal list of beloved female characters on a show that, against all odds, took an awful situation and transformed it into a BIG personal plus for Sansa. Although as a woman I do love a good strong female lead, we should not forget the story arcs of are tortured men such as Jon Snow and one of my favorites Theon Greyjoy. Our triumphs, tribulations and our failures all create who we are as people and although these are fictional characters, we can see ourselves within them which is why we relate to them so much.

Between Arya aka Maisie Williams (GoT, Doctor Who) suffering from depression and Dany aka Queen T Emilia Clarke almost dying from blood vessels EXPLODING IN HER HEAD, my Fire and Ice ladies still fight their own demons in real life. This is what we should be discussing; how these women are working tirelessly for our benefit and coming out victorious in the end career-wise and battling very real health issues. We “normal” women struggle with baby dragons of our own (PPD) plus health issues and full time work. While I have never suffered from brain anyerisms, I have been down for the count with major and severe migraines. I can’t even fathom the pain she (Clarke) went through all for the sake of a television show. As someone who understands a deep personal journey which has many twists and turns with great psychological and physical obstacles, let us leave this show knowing that our favorite heroines live on in our hearts even after the end credits role.

So hate on Ms. Clarke if you will because she had stars in her eyes. She will always be the Mother of Dragons and Breaker of Chains in this home.

#SuicideDue2Pain is a Legitimate Hashtag and That Should Be A HUGE Concern

Yes, we all know that drugs is a huge problem in this country. Millions of people die from overdoses because of drug abuse and that is a major concern. I have lost many people in my life because drug related overdoses and someone I love dearly was brought back by ER doctors twice, so I understand how horrible drugs can be. But for those of us who deal with chronic pain everyday we are the ones who are suffering. I don’t agree with doctors just handing out prescription after prescription. But that is one of just many problems. Those who need narcotics and other opioids are being denied because of other people’s mistakes. I tremble and shake with pain every single day because I am no longer allowed to be given pain medication that can help my chronic pain.

People are killing themselves from pain. If you have chronic pain or a chronic illness you may have, at least once, had that thought flash into your mind.

This is an absolute disgrace. There are pain sufferers who are willing to take drug tests, they are willing to go to pain management doctors, we are willing to do anything it takes so that we can get proper care to appease everyone else. But who is helping us? The doctor who outright said NO I can’t help you so he sends you to a pain management dr who also says NO. By the way that is their job…to help manage pain in a safe way. So instead people are killing themselves because they can’t function. Or maybe they themselves are now getting drugs illegally because that’s the option now.

Politicans are taking OUR choices away because of of something they don’t understand.

Someone needs to figure it out before the NEXT EPIDEMIC is suicide from lack of medical care.

#ButYouDontLookSick…But You May Look Like Shit

Revised

On the online mag all about endo I write for, Do You Endo published a piece I wrote discussing the makeup I like to use. It also explained how people have treated me during my 26 years of dealing with this disease. Rereading has made me realize that there are so many people out there who cover their faces with layers of concealer just to please others. I am one of them. I do it because I really love makeup. Yet I also do it because people can’t keep their pieholes shut about thibgs that don’t concern them. Trying to explain to co workers I was home sick but not contagious was exhausting in itself. I have had people leap away from me when I arrived at work looking green faced from not just endo but actually being sick. No one believed I couldn’t spread it. And none of them believed I was sick at all.

I began to tell them I had an actual sickness that was contagious like the flu.

Endo affects your immune system. I can get fevers when I get a flare. And during my period I can get one of my famous three day long migraines. I am bleeding, puking, and shivering from fever and I definitly look the part of sick girl a lot. So I bought a bunch of makeup. All because people had opinions about my sickish glow (and I was tired of their shitty comments) I put makeup on for them, not me. But the unwanted comments continued anyway. I spent my mornings applying my lipstick, I winged my eyeliner, and highlighted my cheekbones. However instead of being told I look “like shit” I got the “but you don’t look sick” comments. So when I told people I was sick they didnt believe me at all.

So I don’t wear it…I look ill. But I do wear it…I dont look ill enough to take seriously. And that is really the point I was making. Sure makeup to me is fun and I like wearing it. But I stopped wearing it for them and wear it for me. I mean no one at work cares as long as I get the job done. The kid at the supermarket doesn’t care as long as I pay for the food. So I wear it for me and me alone. People get offended when others don’t look presentable enough for their standards. We used to get dressed up to go to a Broadway show or if we went out to dinner. Now people don’t get dressed at all, or to judgemental people they don’t make an effort. We were really dressing up nicely for ourselves because when you’re in a dark theater who the hell can see you anyway?

The point is do it for you. Or don’t. It is YOUR choice. Someone is going to have an issue with you reguardless. Might as well be happy with your own choice.

Frustrated Incorporated

There is nothing worse than feeling frustrated with situations that fall completely out of your grasp. Recently I found out my baby boy is autistic. We had to meet a bunch of specialists and fill out these questions about him. I’ve been in the preschool teaching game for over a decade and seven of those years with kids three and under. I know the signs as a teacher. You notice things a child does differently than the others. And I did notice with him. But boys do things at a different speed then girls. So I wasn’t worried. Not really. Well, maybe a little. A lot of the signs of children on the spectrum can also be seen as typical behaviors. Like categorizing toys by size and color. Repeating certain words and not being clear with them. I knew what bothered my son and what didn’t. It would be fine going forward right? Then I started reading pamphlets and websites and began to worry more. It’s like when you have a small ache that hasn’t gone away for a while and you go on Dr. Google and see what it could be. Suddenly after ten minutes of research, you find out you’re dying of some rare disease that only .5% of people ever got in the history of Earth. These sites began talking about the signs and then I am reading about if he needs adult care and how to live with your autistic child forever. I imagined him at fifty and us barely moving thanks to our barely functioning bodies. How could I care for my grown son when my own shit was a struggle to live with? What happens when I’m sick and he needs me? I am already crawling half the day from my endo.

I am in full panic mode after reading this stuff. We don’t know yet what level (if that’s how they measure) he is. I don’t know if he will do well in school all day. I sit with him now, his pale cheeks spotted with bits of dried muffin and he is happy. He is watching videos about dinosaurs and he is naming them all along with colors and shapes, numbers and animals. He loves other kids and he hugs us and yells out “family hugs!” He jumps with excitement when he sees his older sister and they play legos together. I see him as just GG, my middle baby and happy boy. What if some asshole kid with his yellow-toothed punk friends picks on him? What if he hates himself because he is “different”? What if some shitty teacher targets him and flunks him all the time because he learns differently than other kids? My husband and I sometimes dread these scenarios that, of course, have never happened yet. But my mind is on its own, creating this world that may never occur. And I’ve been a parent for a while now and a teacher for a long time. I know this is just how our minds work. All I want to do is protect my kids from anyone who will ever do them harm. I can only wait which sucks 100%. Until then I can watch him enjoy his little life, his love of snuggles and dinosaurs and hope everything will work out.

#TeamGrayson

Torrent

It has been a while since I wrote poetry. People who don’t suffer from #chronicpain or #endometriosis or anything mental or physical don’t really understand how it feels. I can only express it through words.

“Torrent”

Werewolf or Moon Goddess?

#Halloween and #DayoftheDead have passed but I still feel a bit…#witchy

I currently wrote about how the moon may affect our Cycles as women. If you are like me then everything in that infinite sky above us fascinates you. Especially that large, white orb that is nestled in the velvety blackness. Can the moon tell our bodies what to do and how to feel? I always felt a connection with my #endometriosis. Every time I would feel crippled with pain, that moon would be shining bright in through the window. Can the lunar cycle be tied with our own? Do we become more creative, desirable, or even tired depending on what phase the Moon is in? Perhaps the next time the moon is out stop and think about how you feel. You never know what you may turn into.

1 in 10

I went for a normal exam at my lady doctor. I am here now 2 days later in some of the worst pain in my life. Just keeping up with my health is giving me pain. I have a job, three kids, a husband…a LIFE. And a part of it has to be disrupted by #endo. You may not have any health issues (and I hope you do not!)but if you do you may understand the frustration of it all. Waking up and never knowing if today you will be able to function. Or is it a day you spend hiding under the covers on the couch?

1 in 10 women have #endometriosis. I am part of a great community but we are bound by pain and suffering. We could make our own country with the number of #women who have #endo. Maybe we should. Then at least we could have doctors who don’t dismiss our symptoms or family members who tell us to shut up and deal with it. We need to fight for a greater quality of life. I’m still fighting for it. I am fighting for my daughters and my #endosisters and #endobabes. What are you fighting for?